Developing the synergies between Project PaLaDIn and Project Mercury

Description

Develop, test and deploy frameworks that will enable FSHD patients and FSHD patient advocacy organisations in The Netherlands, France, Germany, Italy, Belgium, Spain, and the United Kingdom to pragmatically and effectively lead, scale and harmonise cross-sector collaboration through utilising the Interactium. Ensure FSHD patients are supported through decisions concerning participation in clinical trials and ultimately help move critical research forward through a navigator program. Generate an Interactium-compatible HTA assessment model for FSHD with a set of SOPs to enable other groups to recreate this work. Additional information: Treat-NMD will be inviting tenders in the near future for this piece of work.