Clinical Database CRANE

Description

For the continued financial support of clinical databases for British Society of Blood and Marrow Transplantation and Cellular Therapy Cleft Registry and Audit Network (CRANE) Lot 1: The Cleft Registry and Audit Network (CRANE) Database collects information on all children born with a cleft lip and / or palate (including those with non-cleft velo-pharyngeal insufficiency) in England, Wales and Northern Ireland.<br/><br/>The CRANE Database has two aims:<br/>• To register birth, demographic and epidemiological data related to all children born in England, Wales and Northern Ireland with the congenital abnormality of clefting of the lip and / or palate.<br/>• To record the treatment of children and adults with clefts of the lip and / or palate and the outcome of such treatment. This data will provide the basis for the national audit of cleft care.<br/><br/>In line with these broad aims, the CRANE Database has the following objectives:<br/>• To provide an up-to-date register of all cleft patients.<br/>• To monitor frequency and incidence of clefting.<br/>• To audit and report on quality of care for patients with clefts and thus promoting high standards in clinical management.<br/>• To trial and introduce (with CDG oversight and consent) an outlier policy for the registration and audit outcome reporting functions of CRANE.<br/>• To support research and focused quality improvement studies.<br/>• To work with and receive advice from the Craniofacial Society and its members to improve the delivery of cleft care.<br/>• To send data to NHS England SSQD for Quality Dashboard production on Quarterly basis.<br/>In addition, the CRANE Database endeavors to strengthen its links with other congenital abnormalities and cleft registries and databases in other countries.